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You have been invited to participate in a research study. Participation in this study is voluntary. You can discontinue your participation in the study at any time. Should you discontinue your participation, you will not be subject to any negative consequences. This privacy notice describes the use of your data.
What is being studied in this research study? What is the purpose of processing personal data?
This is a pilot study to test the data collection infrastructure and study protocols for a larger study on media consumption patterns and their connection to mental health. Data will be collected similarly to the full study, but the analysis will focus on testing the data collection and study protocols. No data will be retained for longer than 30 days.
The subject of this study is: media consumption patterns and their connection to mental health.
Reasons for processing personal data and the purpose of this study: to understand media consumption patters and to connect these to mental health outcomes.
Your personal data is: used without identification to perform this analysis.
Your role in this study: engage in normal activities while data is collected in the background and answer periodic surveys. Optionally, we ask volunteers for access to their media data using data portability APIs.
Personal data will be collected from the following sources:
What personal data is processed?
How is personal data minimized in the study?
Legal basis for processing of personal data
The processing of personal data is required for the performance of a task carried out in the public interest, namely scientific research.
Sharing of Personal Data
Aalto University may need to share some of the research data with third-party collaborators, who are processors of your personal data.
These collaborators include other researchers at Aalto University or other partners.
Aalto University has data processing agreements with these collaborators and they are only allowed to process your data according to data processing agreement that includes processing instructions.
Third-party collaborators will NOT have access to your name or contact information. The data shared with collaborators will not be directly identifiable to you.
Transfer of Personal Data to Non-EU/EEA countries
Personal data is not transferred to non-EU/EAA countries.
Storage period of your data and anonymisation
Name, contact info: For the active period of the study and six months after.
Research data: Data is stored such that it can be completely separated from your identifiers. This split will happen at the latest six months after the active phase of the study, or upon your request and early withdrawal. Research data is stored five years after the end of the active phase of the study.
Research study collaborators will never have access to identified personal data, and will have access to the data for the same duration as researchers.
The rights of the study participant in a scientific study
According to the General Data Protection Regulation (GDPR), subjects have the right:
If the purposes for which a controller processes personal data do not or do no longer require the identification of a data subject by the controller, the controller shall not be obliged to maintain, acquire or process additional information in order to identify the data or the data subject for the sole purpose of complying with the GDPR. If the controller cannot identify the data related to a data subject, the rights of access, rectification, objection and erasure shall not apply, except if the data subject provides additional information enabling his or her identification and the identification of the research data that relates to data subject.
Data is being processed for the purposes of scientific research, and the data is not used in decision-making related to the participant.
To exercise his or her rights, the data subject should contact the Data Protection Officer of Aalto University, or the research study contact person.
More information on the study and the exercising of your rights
The controller in this study is Aalto University.
The contact person in matters related to the research study:
| Phone: | +358-505632634 |
|---|---|
| Email: | talayeh.aledavood@aalto.fi |
Department of Computer Science
Aalto University School of Science
The research participant must contact Aalto University’s data protection officer if they have questions or demands related to the processing of personal data.
Data Protection Officer Anni Tuomela:
| Phone: | +358947001 |
|---|---|
| Email: | dpo@aalto.fi |
In this customer service portal, you can make requests personal data requests based on your rights: Home · Consent Management (aalto.fi).